RESOURCES FOR ENDO WARRIORS
LEARN MORE ABOUT ENDOMETRIOSIS
There are a lot of great places on the internet for you to learn more about Endometriosis. Beware though that there are also sites with misinformation (as with anything you search on the internet). We have listed below a few places that you may be interested in.
The Endometriosis Foundation of America strives to increase disease recognition, provide advocacy, facilitate expert surgical training, and fund landmark endometriosis research. Engaged in a robust campaign to inform both the medical community and the public, the Endofound places particular emphasis on the critical importance of early diagnosis and effective intervention while simultaneously providing education to the next generation of medical professionals and their patients.
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Click here to go to the Endometriosis Foundation of America.
Operating through the Endometriosis Foundation of America, endonews aims to raise awareness and support for women who are struggling in their battle against endometriosis. By providing the latest news on research developments in the field of endometriosis from around the world, we hope our readers gain a better understanding of a disease that affects so many women worldwide and keep up to date with emerging potential treatments.
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Endometriosis or “endo” is the most common, devastating disease that most people have never heard of. It affects 1 in 10 girls and women. That’s approximately 176,000,000 people on the planet.
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Despite its prevalence, women see an average of 8 doctors for 10 years before diagnosis. During that time, many are forced to miss school, leave careers they love, abandon dreams of having children and watch their personal relationships suffer. They’re often told incorrectly by doctors that pregnancy & hysterectomy are cures and that pain is normal or in their heads. After diagnosis, they’re usually prescribed an array of drugs & undergo multiple, ineffective surgeries.
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It’s time to break that cycle. It’s time for a new normal that doesn’t mean multiple doctors, drugs, surgeries, misdiagnoses and years of pain. The only film of its kind, Endo What? gives an accurate, up-to-date base of knowledge straight from the experts.
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It’s a film to educate & put power where it belongs – in the hands of girls & women.
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Endo Stats is a great resource for women with Endometriosis (or suspects Endo). Check out their website to learn the facts. They also have helpful resources like a symptom checklist and notes for your doctor.
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Click here to go to EndoStats.com.
CONNECT WITH OTHER ENDO WARRIORS
Getting connected with other Endo Warriors is highly recommended! We listed a couple places for you to start off with, but you can also do a search on Facebook, Instagram, or Twitter and easily find more groups and people - ranging from local to international.
When you or a loved one are first diagnosed, it's not uncommon to feel alone and uncertain of where to find the best information and people that can help you now. We believe in making it easy to find the best people around you to help you get the answers you need, and to find support from people who can truly relate. The main currency on our site is trust – the more you share in posts and your stories, the more questions you ask and answer, the more your support will be valued by other members.
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MyEndometriosisTeam is the only social network where you can truly connect, make real friendships, and share daily ups and downs in a judgment-free place.
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Click here to go to MyEndometriosisTeam and join the conversation.
Endo Warriors is a face to face and online support organization founded by Jill Fuersich, Jordan Davidson, and Nicole Malachi; who were all diagnosed via laparoscopic surgery in 2007, 2004, and 2007, respectively. After failing to find a support group in the New York area, Jill, Nicole, and Jordan combined forces to create a safe haven for women to tell their stories, vent, and receive support from other women going through similar circumstances.
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Since forming in 2012, Endo Warriors has launched support groups in New York, New Jersey, and Colorado.
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PRODUCTS, GIFTS & MORE
October 24, 2013 I had surgery at Center for Endometriosis Care in Atlanta, GA with Dr. Sinervo. I was diagnosed with Stage 4 Endometriosis. Before I had surgery I wanted to buy a shirt to show the world what I am going through. I search and search to find a shirt. None of them I felt showed how I felt inside. So I decided to design my own shirt and wore it on the day of my surgery. I had overwhelming response of my fellow endo sisters wanting me to make them. Lets not suffer in silence. Lets spread awareness!
-Miranda Smith, Founder
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"I've always wanted to start a company like ChronicAlly Box, but it wasn't until recently that the universe sent me the idea of ChronicAlly Box and I manifested it. I had heard a lot about subscription boxes, and have received a few myself, but never really thought of sending happiness and chronic illness allies to chronically chic women in this type of platform. I had recently subscribed to a bunch of magazines because I really enjoyed the anticipation of those in the mailbox instead of unfavorable lab work and medical bills. So, why not a subscription box tailored to women living with Chronic Illnesses?! I have always said, "I just want to make people happy for my work!" I feel like ChronicAlly Box is helping me to live out that dream." - Founder & CEO
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Do you know of other resources that are helpful to Endo Warriors? Please contact us for it to be considered.
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Disclaimer: Endo Warrior Wellness is not associated or affiliated with any of the resources and/or websites listed on this page. These links have been provided as a way for you to be able to research and connect.